|On 29th June 2020, EHTEL held a Virtual Meeting entitled Making real-world data fit for EHDS: Architectures and processes enabling data re-use. It was part of the Imagining 2029 work programme, a programme that builds on a series of webinars and workshops – hosted by its working groups. The programme is focused on accelerating digital transformation while acknowledging the opportunities and challenges raised by the current COVID-19 crisis. This webinar belongs to the ELO Network agenda for 2020: Getting ready for European Health Data Space(s).|
The webinar in a nutshell
This “Imagining 2029” virtual meeting was supported by the InteropEHRate project. It was hosted by the EHTEL ELO Network of eHealth competence centres. Its rich agenda focused on European policies and governance principles for data re-use and interoperability frameworks for data and consent. It also featured lessons learned on health data re-use by national and regional eHealth competence centres.
👀Watch the video recording on Youtube.
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The virtual meeting was opened by Andreas Grode (ELO Co-Chair, gematik eHealth Competence Centre, Germany) who introduced the agenda and co-chaired by Vesa Jormanainen (ELO Co-Chair, THL, Institute for Health and Welfare, Finland).
A presentation by Stephan Schug followed, which described the European Health Data Space discussions in the first ELO webinar.
István Czismadiá (AEEK Hungary) and Márton Kis (Semmelweis University, Budapest) spoke: They described the joint action that supports the work of the eHealth Network, called eHAction, and its work on the common governance principles for the re-use of health data.
Alessio Graziani (Engineering, Italy) reported on the InteropEHRate approach to sharing patient-centric data and enabling data altruism. Stefano Dalmiani (FTGM, Pisa) explained some scenarios of data re-use for research.
Two “flashlight contributions” consisted of a presentations, first, on the concept of broad consent by Stephan Schug, and, second, on public and private initiatives for operationalising decentralised data spaces by Luc Nicolas.
The last part of the virtual meeting featured an interactive, Q&A discussion. It was facilitated by Henrique Martins (Digital Health Systems, Portugal), and revolved around the re-use of health data, data lakes, and GDPR patient’s consent.
This webinar content builds the foundation for further explorations of health data spaces. It highlights the need for interactions among health and care staff, patients and citizens, and the centres responsible for providing technological and infrastructure support in the European Member States.
As a final outcome, EHTEL has developed a factsheet that summarises the general context of the European Strategy for Data, which was the central topic of the first webinar.
– Download the factsheet (pdf)
– Read the news on the factsheet launch